Fibromyalgia - a mindbody phenomenon

I read a really good update on Fibro today by an experienced bodyworker (fascial work is his thing). Find it here. The criteria for diagnosis may have changed (which is a good thing as it used to pretty much ignore the gut and other symptoms to focus exclusively on the trigger point pain pattern. This would exclude some people for whom the condition hasn't fully expressed itself yet.

My understanding of Fibro is elucidated in my book The Scar that Won't heal - I think it's a mindbody phenomenon brought on my stress, nutrient depletion and hormonal dys-regulation that ultimately affects the mitochondria so they can't produce enough energy. In that is shares much in common with chronic fatigue. But in fibro the body expresses this as poor muscle and connective tissue function so that pain and tightness dominate other symptoms. Lactic acid formed from anaerobic respiration in the tissues causes pain and then the nervous system becomes sensitised to pain so that even non-painful stimulus becomes painful. This brain pain is called central amplification and is a theory proposed by Prof Daniel Clauw which I support. There have been other interesting theories like problem with the small blood vessels of the hand which fail to divert blood to the periphery (hands and feet) properly and another about problems with the heart (POTS). All of these I think are secondary to the stress response (from trauma).

Why is fascia involved? Well fascia is the bodystocking that transmits force throughout the body and it reads subconscious processes in the limbic system, which , if they are activated in a stress response, causes everything to go tight and restricted. It's a fascinating mind-body link which few people outside the body work profession are looking at. In my holistic practice, I use both bodywork and emotional release to help resolve these subconscious tensions. We are not saying everyone can recover completely only that there is much relief to be had and some people DO recover. It is my believe it is possible for everyone but you have to approach the hidden emotional part of your brain and not everyone is willing and not all practitioners are able. We need a new model of the mind and body as interlinked in order to tackle these new phenomena.

Book writing news

Started my book-writing course  (today) and although the title isn't fixed yet (something to do with Healing past trauma; how unresolved emotions undermine your health).. I've written some chapter headings and nearly 10,000 words. Of course since the first part of the book is my story (illustrating how even a 'normal' childhood can impact the adult experience of life), it's been reasonably easy to write (who can't write about themselves!). The next few chapters will use case studies to detail the myriad ways in which blocked emotions or trauma (even mild events can be traumatic to a sensitised person) can cause many chronic illnesses such as chronic fatigue, anxiety, and numbing. Finally I'll be looking at ways in which you can release these to live a more healthy, satisfying life.

Writing is always self-exposing but particularly when you are writing about your own experience and it has caused me some trepidation as many of the people I am writing about are still alive (my mother for instance). However, it's not a blame-game'. I'm very careful not to get into that with either my clients or myself. The point is; your experience is your experience - it's no-one's fault and the point of healing it is not to divert responsibility to someone else i.e 'it's their fault I ended up this way'. This is, instead, an honest account of how childhood events impact upon the adult by virtue of imprinting in the emotional brain (limbic system and brainstem). I think it's a fascinating area and explains why so many people have intractable pain and distress which does not respond to talk therapies (the origin of these emotions are pre-verbal memories which don't have a narrative).  For instance when I had my tonsils out at age 7 or 8, the idea then was that parents did not stay with you overnight. They just left you there. The experience was extremely frightening for me as my parents in their wisdom didn't tell me till the day they dropped me off, AND, it was the first time I had ever been away from home without them. Hospitals have never been my favourite places (I get a weird anxious feeling in them) and now I know why.

I am boosted in my understanding by a new book hot off the press by Bessel Van der Kolk; 'The Body Keeps the Score'. What a great title. Honestly, it's almost the book I wanted to write although based on his clinical experience which is far greater than mine (he is a trauma specialist in NY). I can't recommend it highly enough if you are interested in this field as I am. it was released in 2014 so bang up to date.

Anyhow, the writing process is ongoing, the main thing is how to publish and in what format - digital or print? lots to learn so an exciting time. Of course I'm not sure anyone will want to read it, but hey, I am determine to be positive. You don't know til you try. Happy 2015 everyone.

POTS (postural orthostatic tachycardia syndrome).

I see the Daily Mail ran a story recently saying that POTS could be the 'cause' for 1 in 3 people with CFS. Having heard the woman who heads the research team at Newcastle university talk a couple of years ago I remember thinking at the time she is never going to work out the neurology of this because she's too narrow in her focus. She spent the first 20 mins of the talk (to University Researchers) justifying that CFS is a real disease and not just malingering (presumably the medics that she normally lectures to have that belief). Then when she got to the heart of her presentation and described how they put people on a 'tilt' table to measure their responses (this apparently is how they diagnose it). sounded barbaric and very unpleasant! However, my main bone of contention and one that has been repeated by the Daily Mail is that this is somehow the 'cause' of CFS when clearly it is just another result of autonomic dysregulation (mediated by the limbic system). A client of mine has pointed me to a training programme called DNRS (Dynamic Neural Retraining System) which she uses - I noted they had an article on POTS too. http://www.dnrsystem.com/POTS.html. They say;

Symptoms can include but are not limited to:

• Increase in heart rate, dizziness, fainting, headache, sweating, shakiness, nausea -  mostly worse with standing
• Poor concentration and memory
• Discoloured hands and feet
• Sense of anxiety
• Chest pains
• Nerve pain
• Hyperacusis (sensitivity to noise)
• Photophobia (pain/relapse on exposure to light)
• Changes in taste and smell

I can remember having most of these symptoms when I was ill 15 years ago - however, no-one seemed to be able to link all of these symptoms - they were all treated separately. The first thing I was given was tablets for the dizziness which made no difference at all. However, had I been diagnosed with CFS or POTS for that matter it wouldn't have helped as it is still a descriptive diagnosis of exclusion (i.e we don't know what it is but it's not something neurological/structural, it's characterised by these things so we'll call it CFS/POTS, etc). So, given a diagnosis like that people are left to manage the symptoms with no idea that the limbic system controls all of these things and that ongoing subconscious stress is triggering the limbic system into sympathetic dominance or vagal freeze. Without understanding what is behind it all people are left powerless and controlled by a medical system that then feeds them expensive drugs and surgery as the answer. It would be quite criminal if it wasn't legal...